A jounal written by an adult with the rare genetic disorder, PKU, approaching middle age and struggling with issues of diet, weight gain and the propect of diabetes.
Sunday, 7 December 2008
June 15, 2008
I forgot to do a blood test this month. Tomorrow I have an appointment at Westmead, so there's not really point doing it now. I haven't been taking a supplement, so I think I may have to tell a little whit one about that. When I couldn't take the Lophlex I rang the hospital hoping to get a script for Phlexy-10. I couldn't get one here, seeing as though adults don't have pku, so I'm probably making it up or have miraculously outgrown a recessive genetic metabolic disorder. Having acquired the script I never managed to get it made up. So I think I'll have to fake it 'till I make it.