Showing posts with label 75th anniversary project. Show all posts
Showing posts with label 75th anniversary project. Show all posts

Sunday, 31 May 2009

Off the starting blocks, with a long way to go.

I received the first response back for the book project and it was really great! If more people send stuff like this, the pku book is going to be outrageously good! She even sent in a photograph in case I wanted to use it. Seeing that toddlers' face looking up at me from that photo makes it that much more real. I'm still sending out the guidelines and having problems with some of the email addresses. Maybe the problem is with the attachment? I have no idea so will just have to keep trying. Technology frustrates the hell out of me. Who the hell came up with the spin that it makes our lives easier? Yeah, until it stops working and you and your computer geek can't figure out why and then you have to pay another computer geek who tells you he doesn't know either. That's just great. I'm going to print a copy of that photo and put it near the computer to help remind me that this is real and it's happening. And to remind me why.

Saturday, 17 January 2009

Building up speed.

It has been ten days since I suggested I'd compile the 75th Anniversary book. I have just received my 17th offer of a contribution. With the odd stray (like myself) that I haven't added in yet, there is probably about twenty stories so far. It looks like this is actually going to happen, all I may have to do is point the ship in the right direction. I was asked today if I was going to go to the PKU Association's AGM. It's on at 10 am at Westmead Hospital. I would be guaranteed to be late and have no idea where to go once I get there, the place isn't referred to as 'Big W' for nothing. It also means taking another day off from the Museum and another day without access to emails and given I had 18 to wade through this morning, it's getting kind of necessary. However, I'm feeling that I should go. There are likely to be more pku adults there than I can contact via pku tree and I may be able to say something about the project in general business - assuming of course I have a clue what I'm actually doing by then. Crap.

Sunday, 11 January 2009

The problem with ideas

I like to think that I have good ideas. Sometimes they're more trouble than they're worth. I mentioned on the pku tree site that I thought it would be a good idea to record people's stories, particularly the stories of us 'oldies', to record for posterity's sake the way it was when the effective management of pku was still in its infancy. This idea met with great enthusiasm by some people and ended with me agreeing to write/compile a book to commemorate the 75th anniversary of the discovery of pku. Four days ago this happened and today I find people wanting guidelines of what to write, urging that they need time to get their thoughts together. Guess what guys, I need time to get my thoughts together too. Something is always a good idea when it seems that someone else is going to do most of the work. I still can't get my head around the idea that I will actually be doing this. I find the stress of living so great sometimes. Hell, I can't even pay my damn bills, now I'm supposed to spend the next year doing this. At least if I do it there will be no one else to blame if it's crap. If someone else did a crap job on something that could end up being such a historically significant document, I'd be a bit pissed off. This is all on the same day I applied to be on a reality television programme. My agenda was to raise awareness about pku and special diets catering in general. I'm sick of being an after thought or overlooked all together, just the same, I hope to God I don't hear from them, after all, I have a book to write.