A jounal written by an adult with the rare genetic disorder, PKU, approaching middle age and struggling with issues of diet, weight gain and the propect of diabetes.
Saturday, 17 January 2009
Building up speed.
It has been ten days since I suggested I'd compile the 75th Anniversary book. I have just received my 17th offer of a contribution. With the odd stray (like myself) that I haven't added in yet, there is probably about twenty stories so far. It looks like this is actually going to happen, all I may have to do is point the ship in the right direction.
I was asked today if I was going to go to the PKU Association's AGM. It's on at 10 am at Westmead Hospital. I would be guaranteed to be late and have no idea where to go once I get there, the place isn't referred to as 'Big W' for nothing. It also means taking another day off from the Museum and another day without access to emails and given I had 18 to wade through this morning, it's getting kind of necessary.
However, I'm feeling that I should go. There are likely to be more pku adults there than I can contact via pku tree and I may be able to say something about the project in general business - assuming of course I have a clue what I'm actually doing by then.
Crap.