A jounal written by an adult with the rare genetic disorder, PKU, approaching middle age and struggling with issues of diet, weight gain and the propect of diabetes.
Sunday, 2 November 2008
One foot on a banana skin
Well, the year is nearly over. I think I'm starting to at least try and be 'good'. My last blood count was 1140 and I wouldn't be surprised if this time it was higher still. I have been put onto a different lot of anti depressants (commonly called at my place, anti mad pills) The fact is I feel so sick that I wouldn't know if I'm depressed or not. Nausea, dizziness tiredness are just the beginning, but it is the loss of appetite that could be sending my levels higher. Some of the side effects are very similar to PKU. So if I already have phe levels that are too high, is it smart for me to take a drug with side effects that are the same as having high levels of blood phe? I don't know what's causing what. I have also recently been diagnosed with cluster headaches. The tablets for which seem to make me tired and sick.
The long and short of it is that I don't know what to do with my diet. Should I eat lower protein foods because my blood levels will rise or should I eat higher protein foods because I'm not ingesting enough phenylalanine? I decided to try and eat less protein. I guess I'll know soon enough if it's worked.